Friday, August 19, 2011

back from summer!

I finished the course of prednisone and while I haven't started flaring again (at least, I don't think so) I have noticed some more reaction to certain foods I'm eating so in an effort to halt things before they spiraled out of control I tried taking some pentasa I had stashed away in case of emergency. Instant flare. The morning after I took the first dose I spent about half an hour in the bathroom with urgency, gas and all the rest of it. I persevered and tried another dose after breakfast that morning and had the symptom I hate most of all...going to the bathroom to pee and ending up needing to do more than that. Ugh. I stuck it out for two days, going to the bathroom to poop 6-7 times each day before I decided to give up.
I felt really depressed at this reaction to the pentasa. It spelled out the dreaded idea that immunosuppresants really might be the solution.
I'm determined to not let that happen to me though. It just doesn't make sense for me right now. I am sure that I will never again put my faith in a drug that is not well tested enough.
So I am going to try the SCD diet. It will be hard; I love all the forbidden foods. No more wheat, rice, potatoes, corn or sugar (any kind except honey) for me. This will probably be the hardest thing I have ever done but I try to remind myself that it was hormones and a change in diet which set me off in the first place so perhaps a change in diet will set things right this time.
I hope so.